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Recent Posts

• AHP Patients Have Chronic Symptoms Between Attacks: Study
• The Good Days Between the Hard Ones With Acute Porphyria
• Givlaari Effective at Diminishing AHP Symptom Burden: Study
• How the Common Language of Porphyria Unites Patients and Researchers
• Oral Health Problems in AIP Linked to Kidney, Liver Issues in Study
• My Fight to Receive Outpatient Treatment for Acute Hepatic Porphyria
• Algorithms Developed to Aid Acute, Cutaneous Porphyria Diagnosis
• Representing the Patient Voice at This Year’s Porphyria Congress
• Daily Life Disruptions a Burden for Women With Sporadic AHP Attacks