old Porphyria News Home
Recent Posts
- Regular Use of Blood Letting Shows Ability to Ease EPP Liver Disease
- New Mutation in FECH Gene Linked to EPP, Case Study Reports
- A Meeting of the Minds to Advance Porphyria Research
- Europe Awaits Proposed New Framework for Sharing Health Data
- Even if You Don’t Use Cannabis, You Should Participate in This Survey
- Case: Birth Control Implant Leads to Variegate Porphyria in 18-year-old
- Telehealth Added to Latest Digital-friendly NORD State Report Card
- Our Porphyria Journey: How It Started, How It’s Going
- New UROS Mutation Found as Cause of CEP in Elderly Woman