Advocacy Partner: United Porphyrias Association

United Porphyrias Association envisions a world free from the pain and challenges of porphyria. We are committed to improving the life of the porphyria patient community and are relentlessly focused on advancing rare disease awareness, research, and therapies in all the porphyrias.

Contact: Kristen Wheeden – President
Phone: 800-868-1292
Email: [email protected]

Visit Site ♥ Donate

View All Events

About Advocacy Partners

The information above is provided by our partner. Learn more about our advocacy partners here.