Advocacy Partner: United Porphyrias Association
About the United Porphyrias Association
United Porphyrias Association envisions a world free from the pain and challenges of porphyria. We are committed to improving the life of the porphyria patient community and are relentlessly focused on advancing rare disease awareness, research, and therapies in all the porphyrias.
Contact: Kristen Wheeden – President
Phone: 800-868-1292
Email: [email protected]
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