Columns

September 22, 2020September 18, 2020

To Everyone in the US Affected by Rare Disease: Our Time Is Now

"One Thousand Flaming Swords" – a Column by Claire Richmond, Columns

Some will read this column and think it’s too political — that politics isn’t “in my lane” as a writer. I thought deeply about this prior to posting. On ... Read more

September 15, 2020September 11, 2020

My Secret Weapon for Managing Acute Porphyria Attacks

"One Thousand Flaming Swords" – a Column by Claire Richmond, Columns

In accepting chronic pain and the acute intermittent porphyria (AIP) roller coaster, I came to terms with the realities of my new normal. That brings days that must happen ... Read more

September 8, 2020September 15, 2020

What Doctors Don’t Tell You About Acute Hepatic Porphyria

"One Thousand Flaming Swords" – a Column by Claire Richmond, Columns

Editor’s note: This column was updated Sept. 15, 2020, to emphasize the individuality of the writer’s personal experience, and now specifies the importance of seeking guidance from medical professionals. ... Read more

September 1, 2020September 15, 2020

Twice a Month, Porphyria Cancels My Life

"One Thousand Flaming Swords" – a Column by Claire Richmond, Columns

In the early morning hours, my body jarred me awake. Before opening my eyes, I felt the onslaught of symptoms I knew would be coming before I put myself ... Read more

August 25, 2020September 15, 2020

My Strength Might Inspire You, but I’m a Total Fraud

"One Thousand Flaming Swords" – a Column by Claire Richmond, Columns

Acute intermittent porphyria (AIP) doesn’t define who I am, but it does control what I can do. And my tendency is to talk about that. I will voice my ... Read more

August 18, 2020September 15, 2020

Unexplained Pain and My 19-year Search for Answers

"One Thousand Flaming Swords" – a Column by Claire Richmond, Columns

When Desiree Lyon, founder of the American Porphyria Foundation, described to a doctor her first attack of acute intermittent porphyria (AIP) at the age of 17, she likened it ... Read more

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