Delayed diagnosis, high healthcare costs in porphyrias EPP, XLP: Study
Multiple testing and specialist appointments are often needed for diagnosing erythropoietic protoporphyria (EPP) and X-linked protoporphyria (XLP), and both conditions are frequently associated with significant healthcare costs. That’s according to a real-world study that analyzed the medical records of EPP and XLP patients in the U.S. The patients waited about…