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Recent Posts

• Liver biopsy shows protoporphyria, solving diagnostic mystery
• Testing umbilical cord blood can help ID porphyria in newborns
• FDA grants priority voucher for investigational EPP drug bitopertin
• TFW treatment for EPP becomes a national priority
• PORT-77 gets FDA orphan drug, fast track designations for EPP and XLP
• Variegate porphyria skin fragility worsens sun damage, study shows
• Celebrating a turning point for congenital erythropoietic porphyria
• Drug-eluting stents safely used in man with porphyria, heart disease
• Porphyria attack after surgery can be easily missed: Case report