Nothing could’ve prepared me for the symptoms of porphyria
Growing up, whenever I’d go to the doctor with my mom, she’d inform them that she had porphyria. But even though the condition has affected several generations on her side of the family,…
Kalyn Shelton lives in North Carolina and battles acute intermittent porphyria, which runs in her family. Because it’s a family trait, she was diagnosed in the early stages of her attacks. Kalyn’s goal is now to spread awareness about porphyria in hopes that others will seek treatment and that healthcare professionals will be more informed on how to treat patients with any of the eight types of porphyria. To help achieve this goal, she writes this column, “I’m Not Always Me.”
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