Author Archives: Mary Chapman

Acute Porphyria Attack Triggers

It is important to understand what are the potential triggers of acute porphyria attacks. That way, you may be better able to avoid them if you have porphyria. In addition to genetic risks, environmental factors may trigger the development of porphyria and these painful attacks. What is porphyria?…

NORD’s Caregiver Respite Program Continues Through Pandemic

Caring for a loved one with a rare disease, especially during these uncertain times, demands significant time, attention, patience, and dedication. To help meet that need, the National Organization for Rare Disorders (NORD)’s Rare Caregiver Respite Program may be a helpful resource. The program seeks to give a…

Sleep Hygiene for Porphyria Patients

People with porphyria often have trouble sleeping. Because a good night’s sleep is vital to physical and mental health, as well as your quality of life, you may benefit from practicing sleep hygiene. What is porphyria? Porphyria refers to a group of disorders in which porphyrins — molecules normally used…

Mindfulness for People With Porphyria

The symptoms of chronic diseases such as porphyria can present real challenges in your everyday life. One way to help cope is through a practice called mindfulness. The following will provide more information on how to practice this technique. What is porphyria? Porphyria refers to a group of disorders in…

Medical Alert Cards for Porphyria Patients

Treating porphyria depends on the severity of symptoms and whether the disease is acute or cutaneous. However, physicians may not be familiar enough with the disorder to respond adequately in a medical emergency. Medical alert cards can be of paramount importance in such instances. What is…

Traveling With Porphyria

Traveling may put you at an increased risk if you have porphyria, depending on the type of disease you have. Here is some information that may help you to have a successful, safe trip. What is porphyria? Porphyria refers to a group of disorders in which…