Recent Posts
- EPP takes major toll on patient quality of life: Study participants
- My biggest porphyria triggers as someone living with AIP
- EPP diagnosis urged for young people with skin, liver issues
- Newborn infant’s potential case of harderoporphyria detailed in report
- Rare EPP case starts with symptoms in liver, not skin, report finds
- Understanding my health became vital after my AIP diagnosis
- Many with unexplained abdominal pain go untested for AHP
- Variegate porphyria can cause unusual mental health symptoms
- Teens with EPP shed light on what it’s like living with porphyria