Recent Posts
- Porphyria Awareness Week and Global Porphyria Day coming up
- Liver disease can increase burden of EPP, patients report in study
- Porphyria warriors: Gone too soon, but not forgotten
- How I ended the generational curse that is porphyria
- Acute hepatic porphyria prevalence more common in women
- AIP patients’ high sugar and fat diet leads to metabolic problems: Study
- AHP diagnosed in young woman with brain swelling, nerve damage
- New variegate porphyrias show neurodevelopmental delay, lesions
- What does raising a child with a rare disease look like?