Recent Posts
- Researchers report first documented case of mosaic mutation in AIP
- Why I’m attending the International Porphyrias Symposium Patient Day
- Porphyrin precursors in urine hint at liver cancer risk in AIP: Study
- Planning a wedding with porphyria was scary but oh so worth it
- Hereditary iron accumulation tied to PCT in middle-aged woman
- In rare case, birth control implant found to trigger porphyria attack
- Plasma exchange helps to relieve teenager’s porphyria symptoms
- Overcoming the hardships of explaining invisible diseases
- Some AHP patients could receive Givlaari through BC PharmaCare