Hope in Action – a Column by Kristen Wheeden

How to Attend College With Porphyria on the Personal Syllabus

We recently returned from a college visit for my youngest son, Brady, who lives with erythropoietic protoporphyria (EPP), an ultrarare disease characterized by extremely painful phototoxic reactions to sun exposure. I can’t believe we’re already looking at college! Wasn’t I just prepping his kindergarten teacher to help manage…