COVID-19 and Porphyria

Information About COVID-19

As the COVID-19 pandemic continues, Porphyra News strives to cover various aspects of the virus and its impact on the patient community. Click the “Learn More” button for more information on COVID-19, including how it affects Porphyria patients. Scroll down to see some of our recent news stories and columns related to the pandemic.

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COVID-19 News

  1. May 6, 2021 News by Hawken Miller

    Despite COVID Vaccinations, Caution Still Crucial for Transplant Recipients
  2. April 23, 2021 News by Patricia Inácio, PhD

    Quick Approval Given COVID Vaccines Raise Concerns, Rare Disease Patients Say
  3. April 16, 2021 News by Patricia Inácio, PhD

    EveryLife Scholarship Fund Open Until May 7 for Adults With Rare Diseases in US
  4. February 11, 2021 News by Mary Chapman

    Pandemic Won’t Stop Rare Disease Day on Feb. 28
  5. January 26, 2021 News by Forest Ray PhD

    COVID-19 Vaccines Pose Little Risk to Rare Disease Patients, FDA, CDC Say
  6. January 20, 2021 News by Mary Chapman

    NORD’s Caregiver Respite Program Continues Through Pandemic
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COVID-19 Perspectives

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    May 25, 2021 Columns by Claire Richmond

    Why I Won’t Quit Wearing a Mask
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    March 16, 2021 Columns by Claire Richmond

    Monitoring Porphyria Symptoms After My 1st COVID-19 Vaccine Shot
  3. pushing my body, fiance, friends, migraines, normal, ornament, pain, kindness, candy, joy, medical gaslighting, voting, flare, attacks, twice a month, pain, life
    February 23, 2021 Columns by Claire Richmond

    My Mother’s Recent Diagnosis Confirms Need for Rare Disease Awareness
  4. pushing my body, fiance, friends, migraines, normal, ornament, pain, kindness, candy, joy, medical gaslighting, voting, flare, attacks, twice a month, pain, life
    February 9, 2021 Columns by Claire Richmond

    My Fiancé Is My Caregiver: Making Romance Work With Rare Disease
  5. pushing my body, fiance, friends, migraines, normal, ornament, pain, kindness, candy, joy, medical gaslighting, voting, flare, attacks, twice a month, pain, life
    December 15, 2020 Columns by Claire Richmond

    Porphyria Has Taught Me There’s No Going Back to Normal
  6. pushing my body, fiance, friends, migraines, normal, ornament, pain, kindness, candy, joy, medical gaslighting, voting, flare, attacks, twice a month, pain, life
    November 24, 2020 Columns by Claire Richmond

    This Holiday Season, Spread Kindness, Not COVID-19
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