Sun Escape is a 4-day 3-night camp experience that creates a community of fun, imagination, creativity and a positive perspective towards our campers’ unique circumstances with the sun. All of our camp activities are purposely indoors or set purposefully in the late evening. Here the sun wont find you….but hopefully adventure will! 

Global Porphyria Day is a worldwide day of advocacy and awareness for the porphyria community.

The 2025 International Porphyrias Symposium is a premier 3-day educational event dedicated to advancing knowledge in heme biosynthesis and the pathogenesis and treatment of the acute hepatic and erythropoietic porphyrias. The symposium will together leading physicians, researchers, and industry experts together to discuss the latest breakthroughs in diagnosis, management, and treatment from October 9-12, 2025, […]

Join United Porphyrias Association for the International Porphyrias Symposium 2025: Patient & Family Conference, dedicated to the Porphyria community - organized by the UPA President’s Council of patients and families. Set against the backdrop of beautiful Washington, DC at the Arlington Westin, this event is designed to bring together the Porphyria community for connection, learning, […]