Finding my inner strength as a blessed porphyria warrior
The pain of an acute intermittent porphyria (AIP) attack is almost unbearable. It feels like someone is squeezing my right side with their fingernails, and it won’t stop. It has to stop. I…
Kalyn Shelton lives in North Carolina and battles acute intermittent porphyria, which runs in her family. Because it’s a family trait, she was diagnosed in the early stages of her attacks. Kalyn’s goal is now to spread awareness about porphyria in hopes that others will seek treatment and that healthcare professionals will be more informed on how to treat patients with any of the eight types of porphyria. To help achieve this goal, she writes this column, “I’m Not Always Me.”
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