United Porphyrias Association

Sun Escape is a 4-day 3-night camp experience that creates a community of fun, imagination, creativity and a positive perspective towards our campers’ unique circumstances with the sun. All of our […]

Global Porphyria Day is a worldwide day of advocacy and awareness for the porphyria community.

The 2025 International Porphyrias Symposium is a premier 3-day educational event dedicated to advancing knowledge in heme biosynthesis and the pathogenesis and treatment of the acute hepatic and erythropoietic porphyrias. […]

Join United Porphyrias Association for the International Porphyrias Symposium 2025: Patient & Family Conference, dedicated to the Porphyria community - organized by the UPA President’s Council of patients and families. […]