Porphyria News
Recent Posts
- Liver transplant was ‘Trojan horse’ for baby’s variegate porphyria
- With AIP, even minor decisions can have a big impact on life
- Study explains mystery of metabolite rise in ALAD porphyria
- Basic urine test helps doctors in Sri Lanka diagnose rare porphyria
- Blood stem cell transplant corrects defect underlying EPP in 16-year-old
- Woman’s long journey to diagnosis highlights inequalities in AIP care
- Disappointed by the FDA’s ruling on an investigational EPP treatment
- The importance of being able to explain our porphyria symptoms
- Unexplained abdominal pain and low sodium reveal AHP diagnosis