Porphyria News
Recent Posts
- Givlaari Effective at Diminishing AHP Symptom Burden: Study
- How the Common Language of Porphyria Unites Patients and Researchers
- Oral Health Problems in AIP Linked to Kidney, Liver Issues in Study
- My Fight to Receive Outpatient Treatment for Acute Hepatic Porphyria
- Algorithms Developed to Aid Acute, Cutaneous Porphyria Diagnosis
- Representing the Patient Voice at This Year’s Porphyria Congress
- Daily Life Disruptions a Burden for Women With Sporadic AHP Attacks
- Before My Acute Hepatic Porphyria Diagnosis, I Thought I Was Going Insane
- Phase 2 Study to Test Bitopertin for 2 Types of Cutaneous Porphyrias