Porphyria News
Recent Posts
- Abdominal Pain, Confusion May Indicate Acute Attack
- How I’ve Found Peace During Endless Nights of Insomnia
- Severe Case of Rare Porphyria, CEP, Diagnosed in Newborn
- US Patient Groups Give Thumbs-Up to Rule Against Surprise Billing
- Is Holding On to Artifacts of My Pre-illness Life Affecting My Disease Acceptance?
- Partnership Aims to Lower Out-of-Pocket Costs for Rare Disease Meds
- TAF Financial Aid Program Accepting New Porphyria Patients
- Facing Discrimination With an Invisible Illness
- Nominations Open for 2022 Eurordis Black Pearl Awards