Porphyria News
Recent Posts
- Woman’s long journey to diagnosis highlights inequalities in AIP care
- Disappointed by the FDA’s ruling on an investigational EPP treatment
- The importance of being able to explain our porphyria symptoms
- Unexplained abdominal pain and low sodium reveal AHP diagnosis
- FDA denies accelerated approval of bitopertin, awaits trial results
- Mouse study: Genes, diet may shape risk for common porphyria
- Claw-like hands revealed hidden nerve damage in woman with AIP
- Being a blessed porphyria warrior is about more than just a slogan
- New EPP drug candidates hard to compare with Scenesse, analysis finds