Porphyria News
Recent Posts
- My porphyria diagnosis began with mood swings, pain, and nausea
- Poorer physical, social quality of life found for EPP children in study
- Neurofilament light, nerve damage marker, high in AHP patients
- New AI algorithm scans patient records to find undiagnosed AHP
- Iron supplements may cause side effects for EPP patients
- The unseen battles: Advocating for mental health in the porphyrias
- Scenesse may gain orphan drug status for variegate porphyria in EU
- Rare mutation causing hereditary iron disorder leads to PCT: Report
- Risk factors, effective treatments for PCT identified in study