Porphyria News

Recent Posts

• Celebrating a turning point for congenital erythropoietic porphyria
• Drug-eluting stents safely used in man with porphyria, heart disease
• Porphyria attack after surgery can be easily missed: Case report
• EPP takes major toll on patient quality of life: Study participants
• My biggest porphyria triggers as someone living with AIP
• EPP diagnosis urged for young people with skin, liver issues
• Newborn infant’s potential case of harderoporphyria detailed in report
• Rare EPP case starts with symptoms in liver, not skin, report finds
• Understanding my health became vital after my AIP diagnosis