Porphyria News

Recent Posts

• UPA and Shadow Jumpers to host sun-free camp experience in May
• Sensor tracking light exposure may help EPP patients: Study
• Vitamin B6 normalizes Givlaari side effect in woman with AIP
• With acute hepatic porphyria, our stories are never entirely finished
• Bitopertin reduces toxic metabolite PPIX in Phase 2 AURORA trial
• ‘Vague’ AIP symptoms underscore difficulty with diagnosis
• The benefits of finding experts in the field of the porphyrias
• What to do when your sibling also has an acute porphyria diagnosis
• Porphyria triggers may derail energy output in brain: Mouse study