Skip to content
Porphyria News logo
  • About porphyria
    What is porphyria?
    Types
    Causes
    Symptoms
    Diagnosis
  • Treatments
    Approved treatments
  • News
  • Columns
    Hope in Action — Kristen Wheeden
    I’m Not Always Me — Kalyn Shelton
    Archived columns
    • One Thousand Flaming Swords — Claire Richmond
  • Advocacy partners
  • What can we help you find today?

May 25, 2020 News by Larry Luxner

Eurordis Urges Expansion of Newborn Screening Initiatives Across Europe

European authorities must step up efforts to screen babies for a multitude of genetic disorders, a panel of experts suggested during a May 14-15 online medical conference. The session was part of the 10th European Conference on Rare Diseases & Orphan Products (ECRD2020) — which was to have occurred…

Recent Posts

  • Porphyria Awareness Week and Global Porphyria Day coming up
  • Liver disease can increase burden of EPP, patients report in study
  • Porphyria warriors: Gone too soon, but not forgotten
  • How I ended the generational curse that is porphyria
  • Acute hepatic porphyria prevalence more common in women
  • AIP patients’ high sugar and fat diet leads to metabolic problems: Study
  • AHP diagnosed in young woman with brain swelling, nerve damage
  • New variegate porphyrias show neurodevelopmental delay, lesions
  • What does raising a child with a rare disease look like?


Envelope icon

Subscribe to our newsletter

Get regular updates to your inbox.

Bionews, Inc.

3 W Garden St
Suite 700
Pensacola, FL 32502
Website: bionews.com
Email: info@bionews.com
Phone: 1-800-936-1363

  • About Us
  • Leadership
  • Our Culture
  • Editorial Policy
  • Advertising Policy
  • Corrections Policy
  • Terms of Service
  • Privacy Policy
  • Careers
  • Contact Us
Disclaimer

This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Copyright © 2013-2025 All rights reserved.