Like many people with painful chronic illness, I struggle with my mental health. This morning, simply getting out of bed…
Claire Richmond
Claire Richmond was diagnosed with acute intermittent porphyria in 2017 after living with unexplained pain for 19 years. She was 32 years old and quickly learned there’s no guidebook for incorporating a strange rare disease into her life. When she could no longer work full time, she struggled to find her purpose. That’s when she began to write. Claire hopes speaking her truth will build connections and generate hope. She lives in Des Moines, Iowa, with her family and rescue poodle.
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Articles by Claire Richmond
I walk my standard poodle, named Lenny Bruce, around the neighborhood every afternoon. We live in a historic area of…
I have a history of abusive relationships with medical providers. My trauma history stems from medical mistreatment and being dismissed…
Some will read this column and think it’s too political — that politics isn’t “in my lane” as a writer.
In accepting chronic pain and the acute intermittent porphyria (AIP) roller coaster, I came to terms with the realities…
Editor’s note: This column was updated Sept. 15, 2020, to emphasize the individuality of the writer’s personal experience, and now…
In the early morning hours, my body jarred me awake. Before opening my eyes, I felt the onslaught of symptoms…
Acute intermittent porphyria (AIP) doesn’t define who I am, but it does control what I can do. And my tendency…
When Desiree Lyon, founder of the American Porphyria Foundation, described to a doctor her first attack of acute…