Earlier this month, I planted rows of seeds. Twice daily, I watered them with a spray bottle. Within five days,…
Claire Richmond
Claire Richmond was diagnosed with acute intermittent porphyria in 2017 after living with unexplained pain for 19 years. She was 32 years old and quickly learned there’s no guidebook for incorporating a strange rare disease into her life. When she could no longer work full time, she struggled to find her purpose. That’s when she began to write. Claire hopes speaking her truth will build connections and generate hope. She lives in Des Moines, Iowa, with her family and rescue poodle.
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Articles by Claire Richmond
It was an average, restless morning, when time was meaningless and elusive. With the muted glow of streetlights peeking through…
Like many with chronic illness, I can function in high pain and with low energy. Living with acute hepatic…
No matter what, I will always have my girlfriends. Nothing against my incredible soon-to-be husband, Michael, those were simply the…
The rare disease community took some serious hits in 2020. Critical clinical trials were halted and orphan drug…
I have to stop beating myself up for being unable to accomplish things my healthy body could. The day I…
When my fiancé, Michael, first asked me out, he never expected to one day be my caregiver. In honor of…
I love coffee, but it doesn’t play well with my acute hepatic porphyria (AHP). Caffeine stimulates the central…
My undiagnosed rare disease sabotaged friendships. For years, I kept my acute hepatic porphyria (AHP) hidden for fear of…
I would rather put on a strong face than admit to anyone the sheer amount of pain I’m enduring. I’m…