Recent Posts
- Scenesse may help reduce liver damage in EPP patients
- Why I gave up high-intensity exercise to manage my AHP
- Case highlights need for awareness, prompt diagnosis of EPP
- It’s been an illuminating path to high school graduation with EPP
- Children’s cases show porphyria diagnosis in kids rare, possible: Study
- Why Netflix’s ‘Queen Charlotte’ should come with trigger warnings
- AIP possibly linked to type of liver cancer in woman, 72: Case study
- EPP diagnosis took 3 years and a second liver biopsy for boy in Japan
- Why I wrote a job description for living with acute porphyria