Diseases that are characterized by high levels of porphyrins in the blood, urine, and tissues, are grouped under the name porphyrias. It’s important to discuss with your doctor the risks ... Read more
Porphyria refers to a group of rare diseases characterized by high levels of porphyrins in the blood, urine, and tissues. What are porphyrins? Porphyrins are ring-shaped molecules that undergo ... Read more
There’s currently no cure for porphyria, and only a few therapy options are available to treat the symptoms of this group of rare inherited blood disorders. None of them ... Read more
Porphyria is a rare disease that affects fewer than 200,000 people in the U.S. Many physicians are, therefore, unfamiliar with it and its treatment. This could be a major ... Read more
If you have porphyria, you likely may regularly have trouble getting a good night’s sleep. There are ways to help remedy that. What is porphyria? Porphyria refers to a group ... Read more
If you have acute porphyria, it’s important to know that diet and nutrition may help to ease your symptoms. What is porphyria? Porphyria refers to a group of disorders in which ... Read more
Porphyria refers to a group of disorders in which affected individuals cannot make hemoglobin. Hemoglobin is the protein that binds oxygen in red blood cells. Due to this inability, porphyrins — ... Read more
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