I can describe chronic fatigue, but it’s impossible to understand unless you’ve experienced it. It’s feeling exhausted from your morning shower; it’s falling asleep every time you crack open a book; it’s feeling too weak to pick up the watering can in the garden; it’s feeling more tired after a…
I don’t want to brag, but one time I was awake for eight days straight. I was hospitalized with an acute hepatic porphyria (AHP) attack, but didn’t yet have a name for what was going on. To say it was a nightmare would be cruel, because I would’ve made…
People with porphyria often have trouble sleeping. Because a good night’s sleep is vital to physical and mental health, as well as your quality of life, you may benefit from practicing sleep hygiene. What is porphyria? Porphyria refers to a group of disorders in which porphyrins — molecules normally used…
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