I thought I might never get over the loss I felt upon learning I had acute hepatic porphyria. In…
Claire Richmond
Claire Richmond was diagnosed with acute intermittent porphyria in 2017 after living with unexplained pain for 19 years. She was 32 years old and quickly learned there’s no guidebook for incorporating a strange rare disease into her life. When she could no longer work full time, she struggled to find her purpose. That’s when she began to write. Claire hopes speaking her truth will build connections and generate hope. She lives in Des Moines, Iowa, with her family and rescue poodle.
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Articles by Claire Richmond
Every October, the Midwest Alliance for Mindfulness (MAM) hosts a silent retreat in the woods outside of Kansas City,…
Acute hepatic porphyria (AHP) symptoms are caused by a specific set of triggers,…
The first time I realized I was rare, a doctor at the Mayo Clinic said he’d never seen a test…
Blaming COVID-19 was convenient the first two times Michael and I canceled our wedding. For me, it was…
I don’t always know how my body feels upon waking. After acute porphyria symptoms went undiagnosed for years,…
The first thing I wanted to do after I learned I had acute hepatic porphyria (AHP) was to find…
Michael pulled on a soft green shirt, its fabric thinning and stained with splatters of white paint. It’s part of…
I used to be a distance runner. More accurately, I used to be a runner of a very defined distance.
With the release of Netflix’s “Queen Charlotte: A Bridgerton Story” on May 4, it seems like everyone’s talking about…