Author Archives: Claire Richmond

Twice a Month, Porphyria Cancels My Life

In the early morning hours, my body jarred me awake. Before opening my eyes, I felt the onslaught of symptoms I knew would be coming before I put myself to bed last night. Pain. Not a stomach cramp, not a tummy ache, but bullet holes riddled through my mid-section, smoldering…

Unexplained Pain and My 19-year Search for Answers

When Desiree Lyon, founder of the American Porphyria Foundation, described to a doctor her first attack of acute intermittent porphyria (AIP) at the age of 17, she likened it to “a thousand flaming swords” embedded into her abdomen. I think of her words often, as I’ve struggled throughout…