I lived with my rare disease for 19 years before finding answers. The first time I was hospitalized for an…
Articles by Claire Richmond
Disclaimer: The opinions in this column are my own. The decision to have children is deeply personal and isn’t universally…
When it comes to treating porphyria symptoms, there are more options than prescription medication alone. Just about every patient I…
All types of porphyria share a hallmark symptom: horrific pain. For many of us, our illness is largely invisible.
Acute hepatic porphyria (AHP) is a complex rare disease that takes up a lot of brain space. Nothing is…
My acute hepatic porphyria (AHP) diagnosis was a whirlwind that transformed my life and the lives of my loved ones.
Every February, my inbox fills with information about Rare Disease Day webinars, forums, and promotions. On social media, patients and…
I’m a huge fan of mornings. They once stood for solid productivity. Before reporting to the office at 8 a.m.,…
There is a general lack of understanding and awareness when it comes to pain associated with acute porphyria attacks.
In recent years, I’ve overhauled my idea of goal setting. A few years ago, I sat down one January to…