Givlaari (givosiran) is the most exciting development in the acute hepatic porphyria (AHP) community since Panhematin (hemin for injection)…
Articles by Claire Richmond
The holidays are a tricky time for people living with chronic illnesses like acute hepatic porphyria (AHP). My body doesn’t…
My neighborhood pharmacy was randomly closed last Friday. Given the amount of medications I use to manage symptoms of acute…
My rich and complex history with hormones started at age 15, when I turned to various estrogen and progestin combos…
The presentation began and I found my seat. Looking around the meeting room, I knew that every single person was…
I have a confession to make. I’ve read the “Twilight” saga. Yes, even the “Eclipse” novella about the…
The U.S. healthcare system is good at helping people in crisis get over the hump. But what if your disease…
I had a short-lived, yet severe, acute hepatic porphyria (AHP) attack in mid-September. Like a descending tornado, it came…
I run late. I sleep in. I am a slow processor. I only have so much control over my pain…
Well, I finally did it. I started Givlaari (givosiran). Since my diagnosis in 2017, the development of this new…