Pain is a part of life. For me and an estimated 50 million people in the United States, it’s…
Claire Richmond
Claire Richmond was diagnosed with acute intermittent porphyria in 2017 after living with unexplained pain for 19 years. She was 32 years old and quickly learned there’s no guidebook for incorporating a strange rare disease into her life. When she could no longer work full time, she struggled to find her purpose. That’s when she began to write. Claire hopes speaking her truth will build connections and generate hope. She lives in Des Moines, Iowa, with her family and rescue poodle.
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Articles by Claire Richmond
My 19-year journey to an acute hepatic porphyria (AHP) diagnosis was fraught with misdiagnoses and traumatic misunderstandings.
Outfit planning has always been an event for me. I think it started with wanting to be just like Melissa…
I can describe chronic fatigue, but it’s impossible to understand unless you’ve experienced it. It’s feeling exhausted from your morning…
I don’t want to brag, but one time I was awake for eight days straight. I was hospitalized with an…
I save nothing. Clothes I no longer wear get piled into a donation bag, regardless of the quality or style.
I was already emotional before I checked in at the nurse’s station. More than a week into a severe…
I tugged at my biking shorts and unlatched my helmet. My person and I locked up our bicycles outside a…
At some point, it happens to anyone who opens up about a disability or ailment: Someone will spout a wonder…
I met my new primary care physician (PCP) on a frigid winter morning. I sat in the waiting room clutching…