The symptoms of chronic diseases such as porphyria can present real challenges in your everyday life. One way to help…
Articles by Mary Chapman
To empower and equip members of the rare disease community to engage state leaders in matters of importance to patients…
A photo of a bespectacled young boy, his red baseball cap slightly askew as he  enjoys time outside, will be…
Treating porphyria depends on the severity of symptoms and whether the disease is acute or cutaneous.
Same But Different, a nonprofit U.K. group that uses art for social change, is inviting people to choose their…
Traveling may put you at an increased risk if you have porphyria, depending on the type of disease…
When you have a rare disorder such as porphyria, it can be challenging to effectively communicate your concerns to…
The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare…
There’s currently no cure for porphyria, and only a few therapy options are available to treat the…
Porphyria is a rare disease that affects fewer than 200,000 people in the U.S. Many physicians are, therefore,…