If you have porphyria, you likely may regularly have trouble getting a good night’s sleep. There are ways…
Articles by Mary Chapman
If you have acute porphyria, it’s important to know that diet and nutrition may help to ease your symptoms.
The Rare Diseases Clinical Research Network (RDCRN) has opened an online survey to better understand how the…
The National Organization for Rare Disorders (NORD) has opened a financial assistance program for people in rare disease community…
To help patients and families facing out-of-pocket medical costs, The Assistance Fund (TAF) has opened a new program for eligible…
Beginning on Feb. 29, Rare Disease Day, chapters from notable scientific books and clinical review articles covering rare disorders will…
An abundance of events are afoot around the world to mark Rare Disease Day 2020 on Feb. 29. The…
Alnylam Pharmaceuticals has tapped PANTHERx Rare Pharmacy to be a limited distribution partner for its newly approved therapy…
In an ongoing effort to help advocacy groups address unmet needs in rare diseases such as porphyria, therapeutic company…
Scores of events are afoot worldwide to mark Feb. 28, Rare Disease Day 2019. The activities aim to raise awareness about…