Algorithms Developed to Aid Acute, Cutaneous Porphyria Diagnosis

Two new algorithms that can accurately diagnose acute and cutaneous porphyria have been developed and validated, a study from Belgium reports. According to study’s authors, these algorithms can be used to help clinicians correctly interpret porphyria-related lab tests. “To our knowledge, this is the first time that diagnostic algorithms…

Cutaneous Porphyria and the Vampire Myth

I have a confession to make. I’ve read the “Twilight” saga. Yes, even the “Eclipse” novella about the newborn vampire army. I’ve watched all of “Buffy the Vampire Slayer,” as well as the spinoff series, “Angel,” and also “True Blood.” When pop culture flipped the vampire trope from…

Acute Porphyria Attack Triggers

It is important to understand what are the potential triggers of acute porphyria attacks. That way, you may be better able to avoid them if you have porphyria. In addition to genetic risks, environmental factors may trigger the development of porphyria and these painful attacks. What is porphyria?…

Sleep Hygiene for Porphyria Patients

People with porphyria often have trouble sleeping. Because a good night’s sleep is vital to physical and mental health, as well as your quality of life, you may benefit from practicing sleep hygiene. What is porphyria? Porphyria refers to a group of disorders in which porphyrins — molecules normally used…

Mindfulness for People With Porphyria

The symptoms of chronic diseases such as porphyria can present real challenges in your everyday life. One way to help cope is through a practice called mindfulness. The following will provide more information on how to practice this technique. What is porphyria? Porphyria refers to a group of disorders in…

Traveling With Porphyria

Traveling may put you at an increased risk if you have porphyria, depending on the type of disease you have. Here is some information that may help you to have a successful, safe trip. What is porphyria? Porphyria refers to a group of disorders in which…

Treatment Plan for Porphyria

Porphyria is a rare disease that affects fewer than 200,000 people in the U.S. Many physicians are, therefore, unfamiliar with it and its treatment. This could be a major problem, particularly in a medical emergency. If you have the disease, working with your primary doctor to develop and…

Porphyria and Sleep

If you have porphyria, you likely may regularly have trouble getting a good night’s sleep. There are ways to help remedy that. What is porphyria? Porphyria refers to a group of disorders in which affected individuals cannot make hemoglobin, the protein that binds oxygen in…