Many aspects of life with acute hepatic porphyria (AHP) are a difficult adjustment. It was hard to get my…
Articles by Claire Richmond
One night last week, the late-afternoon spring air hinted of summer, warm enough for me to imagine sitting on a…
Acute hepatic porphyria is characterized by episodes of intense pain and fatigue, and then windows of feeling decent. In…
I knew I was in rough shape when I opened my eyes to total darkness. My midday nap had bled…
Rare diseases are tough to diagnose. But when it comes to acute hepatic porphyria (AHP), diagnosis is…
The emergency room was busier than I’d ever seen it, and due to severe acute porphyria attacks, I’ve been…
I live with acute hepatic porphyria (AHP), an inherited metabolic disorder that affects my liver function and my day-to-day…
It was warm on an early December afternoon, and the sand on the Florida Panhandle beach was white and so…
Holiday hacks are tips to make the hustle and bustle of the holiday season easier. I can’t scroll through Instagram…
From the recliner in the chemotherapy suite, I desperately looked around the room for any place of interest to focus…