Last weekend, we barricaded our street and placed tables with chairs along the curb. The distant smell of hot dogs…
Claire Richmond
Claire Richmond was diagnosed with acute intermittent porphyria in 2017 after living with unexplained pain for 19 years. She was 32 years old and quickly learned there’s no guidebook for incorporating a strange rare disease into her life. When she could no longer work full time, she struggled to find her purpose. That’s when she began to write. Claire hopes speaking her truth will build connections and generate hope. She lives in Des Moines, Iowa, with her family and rescue poodle.
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Articles by Claire Richmond
My favorite room in our home is the three-seasons front porch. It overlooks the west side of our house, where,…
On a sunny day last week, I was grateful for the energy to be able to enjoy an early autumn…
I’ve heard people describe living with a chronic illness like acute hepatic porphyria (AHP) as a full-time job. But…
I was once in the hospital during the holiday season. At that time, I could only receive Panhematin infusions…
The day of my diagnosis was the first glimpse into my resiliency and willpower. That morning, my doctor called…
When it comes to chronic illness, I’ve often wondered if living by limited boundaries and conserving energy would prevent my…
The last thing I remembered was screaming out for him as he turned his back to me and vanished. Then,…
Note: This column describes the author’s own experiences with Givlaari. Not everybody will have the same response to treatment.
How Writing Can Change the World
Intentional or not, most of my writing happens in bed. It’s where I reflect on my day, journal my meditations,…